University Dean Biking Across U.S. to Raise Awareness, Funds for Rare Disease
Gregory P. Crawford, dean of the College of Science and professor of physics at the University of Notre Dame, is in Nebraska raising awareness for a rare disease.
Crawford began a 3,500 mile cross-country trip on his bicycle leaving Long Island, New York, in May. He plans to arrive at Pebble Beach, California, at the end of June.
The purpose of his journey is to raise awareness and funds for Niemann-Pick Type C (NPC) Disease and other rare diseases, especially those impacting young children.
NPC is a rare and deadly cholesterol storage disorder that primarily strikes children before or during adolescence. NPC causes cholesterol to accumulate in the body's cells, leading to fatal neurodegenerative issues.
Notre Dame football coach Ara Parseghian lost three of his grandchildren to NPC.
Since 2010, Crawford has successfully completed four bike rides to raise money for NPC research, traveled more than 11,200 miles, attended over 60 Notre Dame alumni club events and raised $1 million for NPC research.
A blog detailing Crawford's cross-country trek can be found at roadtodiscovery.nd.edu.